We are blessed to report more good news today and some prayer requests about upcoming tests.
We learned from a nurse today that there is some concern about sight issues in preemies as the blood vessels do not have time to grow around the eye before they’re born. Once they’re exposed to oxygen, the blood vessels grow quickly and can caused sight issues. There are some procedures that can stunt this growth but it causes issues with peripheral vision and things like that. The eye exam is around 32 weeks (in about a month). Please pray that her eyes develop like they should.
We also learned that next Wednesday (August 31) will be her ultrasound to look for brain bleeds and any kind of neurological issues. If she has a brain bleed, there is a good chance she could have developmental delays, physical handicaps or cerebral palsy. Please pray that there might be zero brain bleeds or other issues with her physical development.
During rounds this morning, we learned that Evelyn’s feeds had been going well except she had spit up for a couple of them. We personally thought that it was because one of the nurses had been feeding her a little fast and the night shift nurses had switched her over to a standardized pump that feeds her over a period of an hour. That has been working well.
Evelyn sleeping with her mouth open
We were able to take some really good pictures of her with the door open, light therapy off, and her hat off. She’s been breathing through her mouth a lot which is why her mouth was open in this picture.
The doctor increased her every-three-hour feeds from 6ml to 9ml. Her bilirubin levels were down in one day from 6.8 to 4.9. Still elevated but going well. She is on day 2 of 5 of the light therapy. They decreased her IV fluids again because of the increase in feeds.
The biggest excitement for us was learning that her stomach IV was to be removed and we could finally hold her! I think learning this overshadowed how much of a big deal this was — according to the doctors, typically a preemie progresses from a UVC (umbilical venous catheter) which is a catheter placed in the belly button area, to a PICC (peripherally inserted central catheter) line inserted in her arm, to a standard IV in her arm or foot. Evelyn completely skipped the need for a PICC line, partly because she is doing well and partly because Lesley is providing enough milk for them to fortify the milk and feed it to her through the feeding tube.
Never have we been more anxious or excited to find out if someone poops! No poop today but we’re hoping for something tomorrow.
We called throughout the day to find out when her UVC would be removed. It was taken out around 5 but we weren’t able to go until later in the day. We were both tired so we visited for a while with her and chose to hold her early the next day. We both decided it would be wise to be fully awake and not tired while holding a preemie.